Looking into holes Part Three

 Pink, turquoise and gold water needles zinged across the front of my face as steam rose up through the forest floor. Tiny bats fluttered about me; they were guiding me to a place of calm away from the storm. I was running. I know that because I felt I was struggling for breath but that was easing now, I felt my lungs relax and expand as I extended my stride, stretching my legs and feeling the shackles that had held me simply melt away.

I’m not sure what day it is. I’ve been in about 3 days and various cocktails had been queuing up to for the vein train.  A lady called Sue arrived at my bedside to explain that, because of the intensity of my chemo treatment, I would be getting a line put in. So there are 3 options for me: a fresh injection each time, a permanently settled double needle into the veins (a cannula) or a 50mm line from under my arm and up to one of the fat arteries near my heart. The latter make everything kind of easy: to take the blood, pump in the antibiotics and chemo and liquid paracetamol. High temperature and a very nasty cough have been stalking me since I came in so I’m hoping we can subdue these apocalyptic horse whisperers. Liquid paracetamol is fantastic and although my temperature hasn’t dropped below 37c I can feel it’s working it’s magic.

I’m working my way into a routine. The family has been fantastically supportive and, despite Brexit, the supply chain of dirty washing, clean washing, fresh fruit et al has got a lot smoother. In the hospital itself I can feel that there are systems and processes in place that leave me unquestioning of any procedure because I think advice from a telecoms consultant on appropriate blood cancer treatments might be less than helpful.

My overall emotion now is gratitude; for my family who are re-organising their lives to provide me with maximum support and pick the threads I so unceremoniously was  torn from and the hospital which simply knows what it’s doing and who’s main concern is to get me to a better place in terms of my ability to ward off the attack on Fort Stephen. I actually don’t feel that bad, aside from the green poo, pink wee and that damn cough trapping my voice inside it. I guess my role is just to be the project for now and the fixed point about which everything else turns. I really didn’t want to be a burden when I got old and I hope, down the road that will not be the case.

My younger son has come down to my house and just taken up the reins. Bank accounts, bills car insurance, cooking, anything really. . I have three children all of whom  I’m proud and all of whom bring something to the party. My eldest is a positive and willing fun dynamo who motivates everyone around him, my second son is a focussed force of nature and my daughter, who has two children and is pregnant, has still managed to organise baking and presents for my wife and grandson’s coterminous birthdays. As for my wife she is relentlessly practical. I joked when we met  that marrying a former geriatric nurse would be a good investment but it’s proven so. I also love her. 

I’m not going to go through my whole extended support , my siblings  who took 2.4secs to confirm they’re up for a bone marrow transplant if needed or my wife’s sister and family who descended on the house like a hospital crash team . It’s enough that I know my wife and I have everything we need emotionally and practically to get through this.

My platelets were low and I was being prepared for a transfusion of soupy platelet magic. The nurse asked if I sensed any irritation, rash of shortage of breath I should let her know. I’m in a bed overlooking a school, a wooded area and, as the night descends, numerous firework displays.

“ I’m really itchy, a rash is spreading across my body and I’m struggling to breath.”

“ stay calm we’ll get you some oxygen, pump in the anti-histamine, fit the nebuliser”

I begin to panic. I’m surrounded by a flutter of concerned bodies. I can see the fireworks outside through the window and feel spots of water splashing over my face. I go to a safe place.

Comments

  1. Oh stephen! I can't begin to imagine how you must feel, but, I do know that if I was in your position now I wouldn't have nearly as much strength as you have!! I'm so proud to call you my brother. xx💪💕

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    1. That’s a lovely thing to say. I don’t actually know which of my glorious siblings this is.

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    2. It's Karen and I meant every word xx

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  2. I think I have no option but to just lie here and defer to the experts. The blog is a useful distraction

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  3. I'm both grateful and impressed that you can articulate a situation which is completely unimaginable to most of us. Not only that but you navigate it all so pragmatically, with a sense of humour and humility, and so truthfully. Sending you love and strength.

    Out of curiosity, what's the origin of the name "staring into holes"?

    Kirst x

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    1. I think the title is just a reflection of my inability to influence but to just watch

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    2. Sounds like the best approach. Easier said than done, so more strength to you Uncle Steve. I thought it might have been in combination with a strange dream. X

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  4. I love reading your writing and this is really resonating with me, seeing things from both sides. It has made me think of Rey when he was in hospital for months last year - your description of being a 'fixed point around which everything is happening but I do nothing' really points to the lack of control you have as the patient but the total 'under control' that the professionals exhibit. We have to let them do what they know to do, and they know exactly what to do. Also, from the communication side, I am so glad that you are communicating with your family and your 'fan club'. When we can't be by our loved ones' sides because of CoVid, not knowing what is happening, and how to support the patient, brings almost as much trauma to the family as the situation does to the patient. Your words of support to me last year were deeply comforting - 'one step at a time'. Thanks for keeping us updated

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    1. Thanks for your comments Amanda. It definitely is just one step at a time with this disease. Definitely can’t look too far ahead. This blog helps me to try and unpick some sense from what has happened.

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  5. Didn't realise there was another blog that answers my previous question. Hope you're not in too long Steve. Keep up the blogs, maybe you should think about writing a book now you've retired. I'd certainly buy it, I love how you write x

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    1. Thanks Sarah. I’ve always wanted to write. Sometimes you just need a kick.

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Looking into Holes: Part one

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